ジェンダー医療研究会:JEGMA

ジェンダー医療研究会は、 ジェンダー肯定医療に関して、エビデンスに基づいた情報を発信します。

キャス・レビュー:子どもと若者のための ジェンダー・アイデンティティ医療に関する独立審査報告書

子どもと若者のためのジェンダー・アイデンティティ医療に関する独立審査報告書


ジェンダー・アイデンティティをめぐるさまざまな複雑な問題を抱える子どもや若者が、医療を通じて最善のサポートと専門知識を得ることは、全くもって当然のことです。

ヒラリー・キャス博士

Contents

議長による序文 p.12
この報告書について p.16
言葉  p.18
要約と推奨事項  p.20
キーポイントと推奨事項  p.23
中間報告  p.25
患者コホートの理解  p.26 
・臨床的アプローチと管理  p.27
・アセスメント  p.28
・診断  p.29
・その人個人にぴったりの治療計画  p.30
・Assessment 28
・Diagnosis 29
・Individualised care plan 30
・Psychological interventions 30
Social transition 31
Medical pathways 32
Long-term outcomes 33
Challenges in clinical decision making 34
Service model 36
Workforce 37
Training and education 38
Service improvement 39
Clinical research capacity 40
Pathways 41
Pathways within the service 41
Transfer to adult gender services 42
Detransition 43
Private provision 43
NHS number 44
Implementation 44
Wider system learning  45

Approach 46

1. Methodology 47
Understanding evidence 47
Building on evidence 52
Stakeholder engagement 60
Summary 64
Context 66

2. History of gender services for children and young people 67
Early gender services for children and young people 67
Emergence of the Dutch protocol 68
Move to an affirmative model 70
Use of puberty blockers in the UK 70

3. Why this Review? 75
NHS England Policy Working Group (PWG) 75
NICE evidence reviews 75
Commissioning of the Independent Review 77

4. Wider context 78
Bell v Tavistock 78
Care Quality Commission (CQC) report 79
Interim report and subsequent developments 80
Understanding the patient cohort 82

5. Changes in the patient profile 84
Sources of information 84
Demographics 85 Gender characteristics 90
Co-occurring conditions 90
Changes in the patient profile 97

6. Developmental considerations for children and adolescents 98
Changes from adolescence into adulthood 102

7. Growing up in the 2000s 106
Generational beliefs and gender identity 106
Online stressors and harm 109
Mental health in children and adolescents 110

8. Possible factors influencing the change in patient profile 114
Biological factors 114
Psychosocial factors 117
Conclusion 121
Clinical approach & clinical management 124

9. International practice and guidelines 126
Guideline appraisal 126
Key points of learning for the NHS 132

10. Assessment and diagnosis 134
International practice 134
NHS practice 136
Perspectives from service users and families 138
Holistic assessment framework 139
Formulation, diagnosis and care plan 143

11. Psychological and psychosocial interventions 150
Perspectives from service users and families 151
International guidelines and practice 152
Understanding the evidence 153
Current NHS practice 154
Summary - psychological and psychosocial interventions 155

12. Social transition 158
International practice 158
Reflections from the Multi-Professional Review Group 159
Perspectives from service users and families 159
Understanding the evidence 161
Summary - social transition 163

13. Medical pathways 166
Perspectives from service users and families 166
Existing endocrine practice in the UK 167
International practice 170
Summary - medical pathways 171

14. Puberty blockers 172
Normal pubertal development 172
Rationale for the use of puberty blockers for gender dysphoria 173
International practice 174
Understanding intended benefits and risks of puberty blockers 175
Summary - puberty blockers 179

15. Masculinising / feminising hormones 182
International practice 182
Understanding the evidence 183
Key considerations 184

16. Challenges in clinical decision making 192
Assessing whether a treatment is clinically indicated 193
Best evidence and information 194
Competency and capacity to consent 195
Best interests of the child/young person 196
Conclusion 196
Service model 198

17. Existing service models 200
NHS England’s interim service - establishing Phase 1 providers 201
International practice 202
Different service models in the NHS 204

18. A new model for gender services for children and young people 206
Summary - service model 210
Workforce 211 Training and education 212
Service improvement 214 Research capacity 215

19. Pathways 217
International practice 217
Current referral pathway 217
Recommended referral pathway 220
Pathways within the service 223
Discharge 224
Detransition 227
Private provision 227
Changing NHS number and access to healthcare 228

20. Implementation 230
Wider system learning 231
Final thoughts from the Chair 232
Glossary 234
References 248
Appendices 264
Appendix 1 264
Appendix 2 268
Appendix 3 270
Appendix 4 272
Appendix 5 274
Appendix 6 276
Appendix 7 278
Appendix 8 280
Appendix 9 282
Appendix 10 286
Appendix 11 288
Appendix 12 290

 

 

著者権

cass.independent-review.uk